"Wounds of Regret": Critical Reflections on Competence, "Professional Intuition," and Informed Consent in Research with Intellectually Disabled People
نویسندگان
چکیده
منابع مشابه
Critical care research and informed consent.
The doctrine of informed consent severely limits the ability of medical researchers to develop, evaluate, and refine investigational technologies for the treatment of patients suffering from heart attacks, strokes, and other "critical care" conditions. In this Article, Mr. Saver examines the current doctrine of informed consent as applied to critical care research and its various deficiencies. ...
متن کاملInformed consent and research design in critical care medicine
The Nuremberg Code recently celebrated its 50th birthday, marking the progress that has been made in ensuring respect for human rights both within and beyond the context of medical research [1]. Today, many journal editors will refuse to consider manuscripts that have not undergone formal review by an independent committee, and virtually none will publish results that were procured without the ...
متن کاملProfessional-patient relationships and informed consent.
Four theoretical ethical perspectives on professional-patient relationships-autonomy, justice, virtue ethics, and the ethic of care-are surveyed, and some of their implications for the informed consent requirement in health care are sketched out. The practical issues of competence to consent, adequate information, and voluntariness are reviewed, and examples are given of the ways in which the t...
متن کاملPain assessment in intellectually disabled people: non-verbal indicators.
BACKGROUND Although important progress has been made during the past decade, research on pain in people with intellectual disabilities is still scarce. Pain assessment in people with intellectual disabilities is a frequent and difficult problem, especially for nurses working with people with intellectual disabilities on a daily basis. Gathering more information about pain in people with intelle...
متن کاملThe Psychology of Competence and Informed Consent: Understanding Decision-Making with Regard to Clinical Research
This Article examines the importance of patient autonomy and competence in medical decision making and how questions of competence affect informed consent. The author explores three hypothetical cases which “outline the parameters of ‘competence’ by illustrating the methodologies used in making [determinations of competence], distinguishing between ethical and legal issues in the assessment of ...
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ژورنال
عنوان ژورنال: Disability Studies Quarterly
سال: 2021
ISSN: 2159-8371,1041-5718
DOI: 10.18061/dsq.v41i2.6869